I remember the first time Sandi and I met. We'd talked quite a few times and realized we lived just 10 minutes apart and had the same name and the same rare diseases...oh, and that Panera had the best soup and bread around. Johnny Lee wasn't yet born and she'd just picked out his name and Sandi, my sister and I had a great lunch and laughed and talked and shared stories and cracked up at how two Sandi(s) with so much in common could be so drastically different, too...not the least of which is that I'm 4'11 and Sandi hovered over me with her long legs and tall frame. Nevertheless, we kept in touch as we both felt able over the years and I was hoping I'd get to see her again. My thoughts are with you all, Sandi, and Johnny Lee. And from one Sandi with PSC to another, I'm keeping up the fight, my friend, fighting PSC for the both of us now. You are missed.
Sandi